Whats the weather like near you?

[Gary Prentice]

Just now, Khriss said:

Seriously thou, have managed just bed to toilet, fr two days, no fags, no wine. K

No wine? You must have been bad!

 

 

 

Still, better now than Christmas day

[Khriss]

Bloody right mum would not have been chuffed.  Given me an  in sight in to yr treatment / therapy ( aches / no energy / nor sleeping ).  Are you in  a remission period yet or is it still transplant stage? K

[Gary Prentice]

30 minutes ago, Khriss said:

Given me an  in sight in to yr treatment / therapy ( aches / no energy / nor sleeping ).  Are you in  a remission period yet or is it still transplant stage? K

Neither really.

 

After the last chemo cycle (before the infections) I still had some residual cancer - so not properly in remission. The paraprotein level was 2. My last test results were 5, from a test two or three weeks ago. So it's multiplying and based on experience and history it'll multiply exponentially (rapidly and aggressively)

 

I saw the consultant this monday and he wanted me in for another cycle between xmas and the New Yr. Bugger that, I've been in at Xmas too often in the last few years so we're putting that back until the first week of 2019.

 

I'm in, as an outpatient tomorrow and next Friday for IV Dexamethasone, Velcade, Lenalidomide and some type of blood transfusion, which I think are precursors to the next chemo cycle - which is given as an inpatient and involves four days of constant intravenous chemo drugs.

 

I wanted to delay everything until I was fitter, so I'm not sure what's triggering his desire for chemo now, as a low/lowish paraprotein/cancer level isn't that harmful, so I'll have to find out the reasoning. Once the cancer is cleared, I think they will move to transplant within a few weeks.

 

Still some confusion on my consultants understanding of what transplants I'm having. He thinks I'm having two, firstly my own saved stems cells back, followed by a second transplant using foreign, non family donated cells after I've recovered from the first transplant. I though I was back to only having one transplant, but I'm not sure. The transplants under a different team at a different hospital. Each transplant is as an inpatient for around four weeks duration, depending on infections and side affects.   

 

So that's where I'm at, but otherwise I'm feeling good (for a ninety year old). In myself I feel well/healthy, just tired a lot. I've actually regained six pounds of the weight I lost while I was admitted, so we're going in the right direction.

 

Sorry for the long reply, but it's a complicated situation to explain.

Edited December 20, 2018 by Gary Prentice

[Khriss]

Yup. Very involved but best news is yr weight gain an feeling optimistic. Am going to miss taking a baseball bat to those hand painted pumpkins, but outrunning gallery security ain't on the cards this week k

[Rough Hewn]

11 degree and warm sunshine.
Makes a nice change from cold and raining.
[emoji106]

[Stubby]

Wet as a wet thing again .

[Ratman]

Wet as a wet thing again .

[emoji848] you talking about a beaver again here Stubby? [emoji6]

[Stubby]

2 minutes ago, Ratman said:

you talking about a beaver again here Stubby?

Busted !

[Woodworks]

Nearly a dry day today with just 3mm of rain. Only one dry day this month so far.

 

Just seen a long-range forecast for January from the Met-Office and we may have some colder weather on the way due to sudden stratospheric warming. No snow for Chrismas though

 

[Ratman]

Been a day of heavy rain here most of the day. Most depressing, and woodworks just put the axe through any optimism i had for a white xmas [emoji30]